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The consumer is faced with almost daily risks to their genetic privacy from human health and reproductive technologies to the criminal justice system. The consumer needs an understanding of the science, the privacy risks involved in releasing genetic information in various contexts and the degree of legal and regulatory protection available.
The Council for Responsible Genetics’ Genetic Privacy Manual is a comprehensive, electronic source of information for the consumer on these issues. The manual can be accessed at: www.councilforresponsiblegenetics.org/geneticprivacy
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